*The PIC Children of our Board of Directors

We are a charitable organization dedicated to improving the quality of life for Protein Intolerant Children (PIC) and their families. We are a chapter of the Partnership for Cures, a 501c3 organization that funds research to promote faster cures for sick children.

 

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The PIC

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Forum

As parents of protein intolerant children, we are navigating very muddy waters. We have found that not much is known about protein intolerance nor how to treat it and live with it.  There seems to be a lack of standardized treatment methods in the medical profession leading to much confusion for families and much suffering for children. We hope to change all of that.

 

Our mission is to improve the lives of protein intolerant children and their families by providing information, resources, support forums, and by promoting public awareness and supporting medical research.

 

We plan to fulfill this mission by accomplishing the following goals:

 

 

  • Empower families
  • Become the number one source of information for families and medical professionals
  • Promote early diagnosis and treatment
  • Promote awareness and education in the public and the medical community

 

It is our hope that this website will serve as a solid source of information to help families make educated decisions about caring for their protein intolerant infant/child.

 

“How do I know if my child has a food allergy or food intolerance? What is the difference?”

 

FOOD ALLERGY

FOOD PROTEIN INTOLERANCE

The body’s abnormal immune response to a food, usually a protein (i.e. peanut allergy)

An abnormal reaction to a food protein usually caused by the body’s lack of a digestive enzyme required to breakdown that specific protein (i.e. lactose intolerance)

COMMON SYMPTOMS

Vomiting

Diarrhea

Cramps

Hives

Eczema

Swelling

Itching/Swelling of the lips, tongue, or mouth

 

Severe reactions can be life threatening and require immediate medical attention and can include:

 

Itching or tightness in the throat

Difficulty breathing

Wheezing/Coughing

Low Blood Pressure

 

Symptoms usually occur within minutes to 1-2 hours after ingesting the food.

COMMON SYMPTOMS (For MSPI and MFPI)

Mucus and/or blood in stools

Inconsolable crying/colic like symptoms for long periods of time

Disrupted sleep

Eczema or rash like marks

“Spit up” an hour or more after feeding

Sulfur like or foul smelling stools

Diarrhea

Red ring around the anus

Peeling diaper rash

Gas/Wind

 

COMMON SYMPTOMS (for FPIES can include the above and the following:)

Profuse and projectile vomiting

Lethargy

Dehydration

Loss of appetite

Low blood pressure

 

Symptoms can occur hours to days after ingesting the food.

*Some information taken from The Children’s Hospital of Philadelphia website.

 

*This list is compiled from the experience of many different parents as well as from several different books on the subject.

 

Many children will experience both allergies and intolerances. It is important to see your pediatrician if your child is experiencing any of these symptoms.

 

Please support our organization by making a tax deductible donation at the 
Partnership for Cures online donation hub or by sending a check to Partnerships for Cures at:
 
Partnership for Cures
Attn: PIC Foundation
70 West Madison Street, Suite 1500
Chicago, IL 60602
 
Be sure to earmark your donation for The PIC Foundation. On the online donation site we are 
towards the top of the list. On your Check, please write "PIC Foundation" on the memo line.

 

Please E-Mail any comments, questions, etc. to...

cbryant@thepicfoundation.org     dbard@thepicfoundation.org

 

 

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